Blessed Beyond Belief
Wow it's hard to believe it's been a whole two weeks since I finally got out of the hospital... Here is a little bit of an update. During my last stay in Children's Mercy I was diagnosed with amplified pain syndrome which in general terms means that my nerves are overactive and misfire when my body is injured. For example where a normal person would stub their toe and hurt for about 30 seconds then move on someone with amplified pain might get much worse pain that lasts longer. It is believed that my gastroparesis and eosinophilic gastroenteritis are causing much more pain than they should due to the amplified pain. For those of you who know what POTS or dysotonomia are this disease encompasses those and has the same characteristics but is a broader term. Because of the new diagnosis I am now involved in an intense physical therapy and desensitization program to try and retrain my nerves to act normally. So far there is no change in my ability to eat and I am still i